PATIENT FELLOWS PROGRAM
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INTERNATIONAL SYMPOSIUM ON ALS/MND
Nothing About Us Without Us
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FELLOWSHIPS
Bringing People with ALS/MND and Caregivers Into The Scientific Discourse
The ALS MND Patient Fellows Symposium Program helps people with ALS MND to participate in the largest annual symposium dedicated to ALS MND research. The 2023 International Symposium on ALS MND will be held in Basel, Switzerland on December 6-8, 2023.
People diagnosed with ALS or MND may apply for the program. Caregivers and ALS gene carriers may also apply.
The selection committee has a blinded evaluation process to try to identify those applicants who will benefit the most from the science and then will share their Symposium experiences and opinions with other people with ALS MND and the research community.
In 2023, applicants may choose to attend the Symposium in person or remotely.
All Fellowships include:
-- Prepaid registration for the Symposium. Information about the Symposium itself can be found at https://symposium.mndassociation.org/
-- A valuable experience with other people with ALS and ALS researchers from around the world.
Patient Fellows who are selected for in-person attendance in 2023 will also receive some limited assistance with hotel and travel expenses.
The International Alliance of ALS MND Associations has graciously invited Patient Fellows to all of their meetings prior to the ALS MND Symposium. These include the Alliance Annual Meeting, their Allied Professionals Forum, and ALS MND Connect.
Click here to learn more about the program from past Patient Fellows Gwen and Phil.
Click here to learn about 2022 Patient Fellow Rick Nelms and his experience.
PATIENT FELLOWS
2023 ONLINE and BASEL FELLOWS
Alexis Behan, United States - Online
Lynn Brielmaier, United States - Online
David Buseck, United States - Basel
Katrina Byrd, United States - Basel
Robin Dewey, United States - Online
David Ray Freebury, Canada - Online
Lisa Galante, United States - Basel
Gisli Jonasson, Iceland - Basel
Ashley lee, United States - Online
Stacy Lewin, MD, United States - Basel
Debbie Lower, United States - Online
Roderick (Rick) Nelms, United Kingdom - Basel
Felipe Ocampo, United States - Online
Cali Orsulak, Canada - Online
Kevin Robinson, United States - Basel
David Shulman, United States - Basel
Ananthprasad Babji Subba, Australia - Online
Karen Sutton, United States - Online
2022 Virtual
Olive Brown, Canada
Douglas Butchart, United States
Jeffrey Derby, Canada
Patrick Dolan, United States
Brooke Eby, United States
Barri Falk, United States
Ray Freebury, Canada
Betty Fuchs, United States
Jack Gray, United States
Alper Kaya, Turkey
Stacy Lewin, United States
Ruth Longhurst, Canada
Roderick Malloy, United States
Cari Meystrik, United States
Rick Nelms, UK
Layne Oliff, United States
Cali Orsulak, Canada
Kevin Robinson, United States
Bruce Rosenbloom, United States
Karen Sutton, United States
Jennie Starkey, UK
Orlando Ruiz, Colombia
Karen Sutton, United States
Paula Trefiak, Canada
Martin WIlliams. UK
2021 Virtual
Malcolm Abernethy Wellington New Zealand
Jennifer Barrett Fajardo Honolulu United States
Eben Cathey Nashville United States
David Doane Bucksport United States
Jack Gray Chesterfield United States
Cassandra Haddad Lititz United States
Alper KayaI ZMIR Turkey
Steven Kowalski Boston United States
David LaForest Mesa United States
Norman MacIssac Montreal Canada
Jan Mattingly Mississauga Canada
Osiel Mendoza Rohnert Park United States
Cari Meystrik Knoxville United States
Layne Oliff Plainfield United States
Cali Orsulak Winnipeg Canada
Juan Reyes Castroville United States
Michael Robinson Zion United States
Orlando Ruiz Bogota Colombia
Paula Trefiak Regina Canada
2020 Virtual
Seth Christensen - US
Jack Gray - US
Philip Green - US
Madeline Kennedy - US
Steven Kowalski - US
Anna Maerker - UK
Jan Mattingly - Canada
Kenneth Menkhaus - US
Cari Meystrek - US
Michael Robinson - US
Bert van Hoeijen - Canada
Erin Vierstra - US
2019 Perth
Ed Buckingham - US
Sunny Erasmus - US
Philip Green - US
Dave Healey - Australia
Jonathan Jenson - US
Gwen Petersen - US
2018 Glasgow
Sunny Erasmus - US
Keith Smith - UK
Bruce Virgo - UK Scotland
2017 Boston (The First Patient Fellows)
Stephen Finger - US
Andrea Lytle Peet - US
Meg Macdonald - US
Vic Walker - US
Sue Pondrom - US
Stephen Winthrop - US
APPLICATIONS
Applications for 2023 are open!
Deadline for applications is the end of the day on Friday, July 21.
The application is will be completed online.
To see a pdf preview of the entire application, click here .
Click HERE to apply.
If you are unable to complete an application online, please let us know using the Contact form and we will figure out another way to get your responses.
Click here to learn more about the program from past Patient Fellows Gwen and Phil!
Selection Team
Sunny Brous
Bruce Virgo
Guðjón Sigurðsson
Gwen Petersen
Aditi Narayan Minkoff
Carol Hamilton
Jessica Mabe
Cathy Collet
WITH GRATITUDE
In the past this program had been funded solely with private donations.
For 2023 we are thankful for a grant from Cytokinetics which will help with program expenses.
We are grateful for the help of the International Alliance of ALS MND Associations.
Special thanks to Dr. Brian Dickie and the MND Association for their consideration and support for the Patient Fellows program.
And we are so grateful for former Patient Fellow Gwen Petersen who has provided valuable program help.
FROM 2020 PATIENT FELLOWS
CONTACT
Questions? We're glad to help.