PATIENT FELLOWS PROGRAM
INTERNATIONAL SYMPOSIUM ON ALS/MND
Nothing About Us Without Us
Bringing People with ALS/MND and Caregivers Into The Scientific Discourse
The ALS MND Patient Fellows Symposium Program helps people with ALS MND to participate in the largest annual symposium dedicated to ALS MND research. The 2022 International Symposium on ALS MND will be held VIRTUALLY on December 6-9, 2022.
People diagnosed with ALS or MND may apply for the program. In 2022 we are also reserving a fellowship for a caregiver and another for a non-symptomatic gene carrier.
The selection committee has a blinded evaluation process to try to identify those applicants who will benefit the most from the science and then will share their Symposium experiences and opinions with other people with ALS MND and the research community.
The Fellowship includes:
-- Prepaid registration for the Symposium. Information about the Symposium itself can be found at https://symposium.mndassociation.org/
-- A valuable experience with other people with ALS and ALS researchers from around the world.
The International Alliance of ALS MND Associations has graciously invited Patient Fellows to all of their meetings prior to the ALS MND Symposium. These include the Alliance Annual Meeting, their Allied Professionals Forum, and ALS MND Connect.
Click here to learn more about the program from past Patient Fellows Gwen and Phil.
Malcolm Abernethy Wellington New Zealand
Jennifer Barrett Fajardo Honolulu United States
Eben Cathey Nashville United States
David Doane Bucksport United States
Jack Gray Chesterfield United States
Cassandra Haddad Lititz United States
Alper KayaI ZMIR Turkey
Steven Kowalski Boston United States
David LaForest Mesa United States
Norman MacIssac Montreal Canada
Jan Mattingly Mississauga Canada
Osiel Mendoza Rohnert Park United States
Cari Meystrik Knoxville United States
Layne Oliff Plainfield United States
Cali Orsulak Winnipeg Canada
Juan Reyes Castroville United States
Michael Robinson Zion United States
Orlando Ruiz Bogota Colombia
Paula Trefiak Regina Canada
Seth Christensen - US
Jack Gray - US
Philip Green - US
Madeline Kennedy - US
Steven Kowalski - US
Anna Maerker - UK
Jan Mattingly - Canada
Kenneth Menkhaus - US
Cari Meystrek - US
Michael Robinson - US
Bert van Hoeijen - Canada
Erin Vierstra - US
Ed Buckingham - US
Sunny Erasmus - US
Philip Green - US
Dave Healey - Australia
Jonathan Jenson - US
Gwen Petersen - US
Sunny Erasmus - US
Keith Smith - UK
Bruce Virgo - UK Scotland
2017 Boston (The First Patient Fellows)
Stephen Finger - US
Andrea Lytle Peet - US
Meg Macdonald - US
Vic Walker - US
Sue Pondrom - US
Stephen Winthrop - US
Applications for 2022 will be open as of July 5.
Deadline for applications is the end of the day on Friday, August 19.
The application is will be completed online.
If you are unable to complete an application online, please let us know using the Contact form and we will figure out another way to get your responses.
Click here to learn more about the program from past Patient Fellows Gwen and Phil!
In the past this program had been funded solely with private donations.
We are grateful for the help of the International Alliance of ALS MND Associations.
We thank I AM ALS for assistance with program administration in 2022.
Special thanks to Dr. Brian Dickie and the MND Association for their consideration and support for the Patient Fellows program.
And we are so grateful for former Patient Fellow Gwen Petersen who has provided valuable program help.
FROM 2020 PATIENT FELLOWS
For me, living in an ALS body that's increasingly isolated, I start or tend to think of my experience as somehow mine alone. The greatest personal benefit of the symposium was to remind me of the breadth of research and global nature of what I'm experiencing personally.
Questions? We're glad to help.