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Bringing People with ALS/MND and Caregivers Into The Scientific Discourse

The ALS MND Patient Fellows Symposium Program helps people with ALS MND to participate in the largest annual symposium dedicated to ALS MND research.  The 2022  International Symposium on ALS MND will be held VIRTUALLY on December 6-9, 2022.

People diagnosed with ALS or MND  may apply for the program. In 2022 we are also reserving a fellowship for a caregiver and another for a non-symptomatic gene carrier.

The selection committee has a blinded  evaluation process to try to identify those applicants who will benefit the most from the science and then will share their Symposium experiences and opinions with other people with ALS MND and the research community.

The Fellowship includes:

-- Prepaid registration for the Symposium.  Information about the Symposium itself can be found at

-- A valuable experience with other people with ALS and ALS researchers from around the world.

The International Alliance of ALS MND Associations has graciously invited Patient Fellows to all of their meetings prior to the ALS MND Symposium.  These include the Alliance Annual Meeting, their Allied Professionals Forum, and ALS MND Connect.

Click here to learn more about the program from past Patient Fellows Gwen and Phil.

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2021 Virtual

Malcolm Abernethy   Wellington  New Zealand

Jennifer Barrett Fajardo   Honolulu  United States

Eben Cathey   Nashville  United States

David Doane   Bucksport  United States

Jack Gray   Chesterfield  United States

Cassandra Haddad  Lititz  United States

Alper KayaI   ZMIR  Turkey

Steven Kowalski   Boston  United States

David LaForest   Mesa  United States

Norman MacIssac   Montreal  Canada

Jan Mattingly   Mississauga  Canada

Osiel Mendoza   Rohnert Park  United States

Cari Meystrik   Knoxville  United States

Layne Oliff   Plainfield  United States

Cali Orsulak   Winnipeg  Canada

Juan Reyes   Castroville  United States

Michael Robinson   Zion  United States

Orlando Ruiz   Bogota  Colombia

Paula Trefiak   Regina  Canada

2020 Virtual
Seth Christensen - US

Jack Gray - US

Philip Green - US

Madeline Kennedy - US

Steven Kowalski - US

Anna Maerker - UK

Jan Mattingly - Canada
Kenneth Menkhaus - US

Cari Meystrek - US

Michael Robinson - US

Bert van Hoeijen - Canada

Erin Vierstra - US

2019 Perth
Ed Buckingham - US
Sunny Erasmus - US
Philip Green - US
Dave Healey - Australia
Jonathan Jenson - US
Gwen Petersen - US

2018 Glasgow
Sunny Erasmus - US
Keith Smith - UK
Bruce Virgo - UK Scotland

2017 Boston (The First Patient Fellows)
Stephen Finger - US
Andrea Lytle Peet - US
Meg Macdonald - US
Vic Walker - US
Sue Pondrom - US
Stephen Winthrop - US

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Applications for 2022 will be open as of July 5.

Deadline for applications is the end of the day on Friday, August 19.

The application is will be completed online.

To see a pdf preview of the entire application, click here .

Click HERE to apply.

If you are unable to complete an application online, please let us know using the Contact form and we will figure out another way to get your responses.

Click here to learn more about the program from past Patient Fellows Gwen and Phil!

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Selection Committee

Sunny Brous
Bruce Virgo
Guðjón Sigurðsson
Aditi Narayan Minkoff
Carol Hamilton
Cathy Collet

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In the past this program had been funded solely with private donations. 

We are grateful for the help of the International Alliance of ALS MND Associations.

We thank I AM ALS for assistance with program administration in 2022.

Special thanks to Dr. Brian Dickie and the MND Association for their consideration and support for the Patient Fellows program.

And we are so grateful for former Patient Fellow Gwen Petersen who has provided valuable program help.

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For me, living in an ALS body that's increasingly isolated, I start or tend to think of my experience as somehow mine alone. The greatest personal benefit of the symposium was to remind me of the breadth of research and global nature of what I'm experiencing personally.

Seth Christensen


Questions?  We're glad to help.

Thanks for submitting!

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